30 minute run in the snow earlier today.
Now at the Wit Theater to see David Sedaris’s Santaland Diaries.
it’s no secret that i’ve been struggling a bit recently…In addition to a really tough week, I’ve been feeling a bit under the weather and catching up on missed sleep from the week.
Feeling better and will hit the road to run tomorrow.
Expect the return of normal posts tomorrow. You know, the kind of posts that clearly detail the awesomeness that is me. The kind of posts that people like Melanie swoon over
And who can blame her? I *AM* awesome
I’ve mentioned several times the last few days that things were stressful for me. There were unexpected changes at work and several friends are no longer with the company.
All three are people I like a great deal, one of them I admire tremendously. I’ve known him for about ten years now and he’s someone I consider a good friend. This is the person I was referring to when I said something bad was about to happen to a friend and there was nothing I could do.
Added to this stress was anxiety for me and others as well. That did nothing but multiply the stress. The past few nights I’ve come home utterly spent and then have restless sleeps. That sure as Hell didn’t help!
There’s a sense of mourning for my friends and a feeling of disconnect. It’s a shame bad things happen, but they do. It’s a shame it happens at this time of year, but it does.
I still have work to do, but I’ll miss my friends.
One final post about epilepsy. I contacted Jack’s parents yesterday to tell them Jack’s package was on it’s way (I sent Jack a marathon shirt, Do Epic Shit wristband, and my Chicago medal).
Here’s the reply from his dad:
Happy belated Thanksgiving David and Janet,
Please don’t apologize for not getting in touch with us sooner, it is a two way street, we all have busy lives in this modern culture we live in, it is a brave new world. Tara and I very much look forward to show Jack the gifts you are sending him. That you are sending him your medal is so generous, Jack will surely wear it with pride. I have unspeakably good news to share with you… Jack has gotten into a spontaneous remission with his seizures. I have read about this possibility with children with Doose (MAE), and Tara and I have prayed for it. We don’t know if it is the two antiepileptic drugs he is on, or the ketogenic diet, or probably a combination of both that has finally and mercifully stamped out the assault on his brain. He has suffered countless seizures over the last 2 years. He recently had a clinic appointment with the ketogenic diet team and we shared the good news that he has gone past three months now with ZERO observed seizures. Previously Jack would average 5 or 6 days seizure free, on rare occasions he went as many as 12 days followed typically by 5 or 6 days of several seizures per day. I asked his neurologist if he believes it is the drugs or diet that has given him control, he said he believes it is the diet…but, he cannot say for sure. He knows that I despise that Jack has to take his drugs, and he knows I would prefer to treat his condition with the diet alone, but since we had so much difficulty getting Jack under control it is too risky to make any changes to his treatment, he said he would like to see Jack seizure free for at least a full year before making any changes. As much as I would like to be able to pull back on his drug dosage Tara and I are totally on board with continuing the current treatment. I also asked him how optimistic we should be that this remission may be permanent, he smiled and said “lets just say it is a really good sign”.
Since the seizures have stopped Jack is gradually showing improvement in his cognitive abilities, he has been hit hard and he is a bit behind his peers both physically and in what little academic testing goes on in junior kindergarten but of course this is to be expected with what he has gone through. He has 3 older girlfriends at school that literally dote on him (it is a split class and all three are senior kindergarten). That’s my boy! He is on the right track now and he can bounce back, I know he can, and he shows signs of it all the time.
David, what you have done with the Chicago marathon in support of Jack is something we will never forget. You will never know how deeply appreciative we are. Send our thanks to Janet for letting you carry on when she knew you were struggling to finish.
All the best,
Ps. The attached picture is of Jack on halloween… just because his special diet does not allow large amounts of sweets doesn’t mean he cannot participate, instead of treats he gets toys J
The message here is several:
Something very bad is happening to a friend today and there’s absolutely nothing I can do to help him.
Today’s workout was 45 minutes on the bike at high cadence.
I meant to post about my beard! I’ve been growing it out just to gross Middle out. She made the mistake of telling me that beards were gross, so I grew mine just to irritate her at Thanksgiving.
It was incredibly successful! I made sure I rubbed it on her face at every chance I had…. It was awesome.
Have you seen the movie Frozen? Its the latest Disney movie and once again, a Disney movie has gotten my in trouble.
One of the earliest songs, ‘Do You Want to Build a Snowman?’, is a tearjerker…it’s mostly sweet, sad…and a bit dirty.
One of the female characters sings “Please…I know you’re in there” and, of course, I said “That’s What She Said”.
In all honesty, doesn’t that lyric SCREAM TWSS???
Evidently, TWSS jokes during Disney movies have now been banned in my household per
the orders of Mein Führer….ooops, damn autocorrect! That’s suppose to read “per Janet”.
Six miles in the book.
Three intervals of 3 miles each. Each one increased the pace by 30 seconds. The last interval was a bit faster than that.
Felt great about this run! Nice way to start the month.
1- mile run at 8:58 pace
45 minutes strength workout that Tridad gave me and am loving it.
Tomorrow has scheduled a six mile progression run.